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Journal of Disability Policy Studies, Vol. 18, No. 4,
245-253 (2008)
DOI: 10.1177/1044207307311527
Early Autism DetectionImplications for Pediatric Practice and Public Policy
Jennifer L. Crane
George Mason University, Fairfax, Virginia, jcrane1{at}gmu.edu
Adam Winsler
George Mason University, Fairfax, Virginia
Autistic spectrum disorders (ASD) present numerous challenges for early diagnosis and intervention. Recent research has concentrated on identifying symptoms of ASD in infants and toddlers. This article examines the feasibility of detecting ASD in infants and toddlers using early behaviors related to ASD and the impact that recent government policy changes and professional guidelines for family practitioners and pediatricians have had on early screening for young children with ASD. Empirical evidence from retrospective video analysis implies that ASD may be detected in infants and toddlers. Recent policy changes and guidelines for pediatricians and other practitioners recommend more intense efforts be made for developmental surveillance and referrals, but the impact of these policies on practice and on the lives of children with ASD and their families has been limited. Policy recommendations are made.
Key Words: assessment/evaluation autism behavioral pediatrics early intervention medical ethics policy toddlers developmental surveillance
References
- Adrien, J.L., Faure, M., Perrot, A., Hameury, L., Garreau, B., Barthelemy, C., et al. (1991). Autism and family home movies: Preliminary findings Journal of Autism and Developmental Disabilities, 21, 43—49.[CrossRef]
- Adrien, J.L., Lanoir, P., Martineau, J., Perrot, A., Hameury, L., Larmande, C., et al. (1993). Blind ratings of early symptoms of autism based upon family home movies. Journal of the American Academy of Child and Adolescent Psychiatry, 33, 617—625.
- American Academy of Pediatrics. (2001a). Developmental surveillance and screening of infants and young children Pediatrics, 108, 192—197.[Abstract/Free Full Text]
- American Academy of Pediatrics. (2001b). Technical report: The pediatrician's role in the diagnosis and management of autistic spectrum disorder in children Retrieved March 30, 2004, from http://www.pediatrics.org/cgi/content/full/107/5/e85
- American Academy of Neurology. (2000). Practice parameter: Screening and diagnosis of autism Neurology, 55, 468—479.[Abstract/Free Full Text]
- American Medical Association. (2006). Continuing medical education for licensure reregistration In State medical licensure requirements and statistics [Electronic version] (pp. 47-50). Retrieved March 6, 2006, from http://www.ama-assn.org/ama1/pub/upload/mm/40/tab15-06.pdf
- American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
- Attwood, T. (1998). Asperger's Syndrome: A guide for parents and professionals. London, UK: Jessica Kingsley.
- Baird, G., Charman, T., Cox, A., Baron-Cohen, S., Swettenham, J., Wheelwright, S., et al. (2001). Screening and surveillance for autism and pervasive developmental disorders. Archives of Diseases of Childhood, 84, 468—475.[Free Full Text]
- Baker, B., & Feinfield, K.A. (2003). Early intervention [Developmental disorders]. Current Opinion in Psychiatry, 16, 503—509.[CrossRef]
- Baranek, G.T. (1999). Autism during infancy: A retrospective video analysis of sensory-motor and social behaviors at 9—12 months of age. Journal of Autism and Developmental Disorders, 29(3), 213—224.[CrossRef][Medline]
[Order article via Infotrieve]
- Baron-Cohen, S., Allen, J., & Gillberg, C. (1992). Can autism be detected at 18 months? The needle, the haystack and the CHAT. British Journal of Psychiatry, 161, 839—843.[Abstract/Free Full Text]
- Baron-Cohen, S., Cox, A., Baird, G., Swettenham, J., Nightingale, N., Morgan, K., et al. (1996). Psychological markers in the detection of autism in infancy in a large population. British Journal of Psychiatry, 168(2), 158—163.[Abstract/Free Full Text]
- Blackman, J.A., (2002). Early intervention: A global perspective. Infants and Young Children, 15(1), 11—20.
- Captioned Films Acts, PL 85-905 (1958).
- Courchesne, E., Carper, R., & Akshoomoff, N. (2003). Evidence of brain overgrowth in the first year of life in autism. JAMA: The Journal of the American Medical Association, 290, 337—344.[CrossRef][Medline]
[Order article via Infotrieve]
- Curry, D.M., & Duby, J.C. (1994). Developmental surveillance by pediatric nurses. Pediatric Nursing, 20, 40—44.[Medline]
[Order article via Infotrieve]
- Dworkin, P.H. (1993). Ready to learn: A mandate for pediatrics. Journal of Developmental and Behavioral Pediatrics, 14, 192—196.[Medline]
[Order article via Infotrieve]
- Education for All Handicapped Children Act, PL 94-142 (1975).
- Education of the Handicapped Act Amendments, 20 U.S.C.
1400 (1986). - Final Regulations, Individuals With Disabilities Education Act Amendments of 1997, 34 C.F.R. Part 300 (1999).
- Fombonne, E. (2003). The prevalence of autism. JAMA: The Journal of the American Medical Association, 289, 87—89.[Free Full Text]
- Gilbride, K.E. (1995). Developmental testing. Pediatrics in Review, 16, 338—345.[CrossRef][Medline]
[Order article via Infotrieve]
- Glascoe, F.P. (2005). Screening for developmental and behavioral problems Mental Retardation and Developmental Disabilities Research Reviews, 11, 173—179.[CrossRef][Medline]
[Order article via Infotrieve]
- Glascoe, F.P., & Dworkin, P.H. (1993). Obstacles to effective developmental surveillance: Errors in clinical reasoning. Journal of Developmental and Behavioral Pediatrics, 14, 344—349.[Medline]
[Order article via Infotrieve]
- Glascoe, F.P., & Kundell, S. (2002). How to manage parent's psychosocial concerns. Patient Care, 36, 77.
- Individuals With Disabilities Education Act, 20 U.S.C.
1400 et seq. (1997). - Kasari, C. (2002). Assessing change in early intervention programs for children with autism. Journal of Autism and Developmental Disorders, 32, 447—461.[CrossRef][Medline]
[Order article via Infotrieve]
- Katsiyannis, A., Yell, M.L., & Bradley, R. (2001). Reflections on the 25th anniversary of the Individuals With Disabilities Education Act. Remedial and Special Education, 22, 324—334.[Abstract/Free Full Text]
- King, T.M., & Glascoe, F.P. (2003). Developmental surveillance of infants and young children in pediatric primary care. Current Opinion in Pediatrics, 15, 624—629.[CrossRef][Medline]
[Order article via Infotrieve]
- Losche, G. (1990). Sensorimotor and action development in autistic children from infancy to early childhood. Journal of Child Psychology and Psychiatry, 31, 749—761.[Medline]
[Order article via Infotrieve]
- Maestro, S., Muratori, F., Cavallaro, M., Pei, F., Stern, D., Golse, B., et al. (2002). Attentional skills during the first 6 months of age in autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 1239—1245.[CrossRef][Medline]
[Order article via Infotrieve]
- McConnell, S.R. (2002). Interventions to facilitate social interactions for young children with autism: Review of available research and recommendations for educational intervention and future research. Journal of Autism and Developmental Disorders, 32, 351—372.[CrossRef][Medline]
[Order article via Infotrieve]
- Osterling, J., & Dawson, G. (1994). Early recognition of children with autism: A study of first birthday home video tapes. Journal of Autism and Developmental Disorders, 24, 247—257.[CrossRef][Medline]
[Order article via Infotrieve]
- Osterling, J.A., Dawson G., & Munson J.A. (2002). Early recognition of 1-year-old infants with autism spectrum disorder versus mental retardation. Development and Psychopathology, 14, 239—251.[CrossRef][Medline]
[Order article via Infotrieve]
- Ramey, C.T., & Ramey, S.L. (1998). Early intervention and early experience. American Psychologist, 53, 109—120.[CrossRef][Medline]
[Order article via Infotrieve]
- Regalado, M., & Halfon, N. (2001). Primary care services promoting optimal child development from birth to 3 years: Review of the literature. Archives of Pediatrics and Adolescent Medicine, 155, 1311—1322.[Abstract/Free Full Text]
- Rosenthal, M., Massie, H.N., & Wulff, K. (1980). A comparison of cognitive development in normal and psychotic children in the first two years of life from home movies. Journal of Autism and Developmental Disorders, 10, 433—443.[CrossRef][Medline]
[Order article via Infotrieve]
- Sand, N., Silverstein, M., Glascoe, F.P., Gupta, V., Tonniges, T.P., & O'Connor, K.G. (2005). Pediatricians' reported practices regarding developmental screenings: Do guidelines work? Do they help? Pediatrics, 116, 174—179.
- Scambler, D., Rogers, S.J., & Wehner, E.A. (2001). Can the Checklist for Autism in Toddlers differentiate young children with autism from those with developmental disabilities? Journal of the American Academy of Child and Adolescent Psychiatry, 40, 1457—1464.[CrossRef][Medline]
[Order article via Infotrieve]
- Sices, L., Feudtner, C., McLaughlin, J., Drotar, D., & Williams, M. (2004). How do primary care physicians manage children with possible developmental delays? A national survey with an experimental design. Pediatrics, 113, 274—282.[Abstract/Free Full Text]
- Stone, W.L., Coonrod, E.E., & Ousley, O.Y. (2000). Screening Tool for Autism in Two-Year-Olds (STAT): Development and preliminary data. Journal of Autism and Developmental Disorders, 30, 607—612.[CrossRef][Medline]
[Order article via Infotrieve]
- Training of Professional Personnel Act, PL 86-158 (1959).
- Turnbull, H.R., Wilcox, B.L., & Stowe, M.J. (2002). A brief overview of special education law with focus on autism. Journal of Autism and Developmental Disorders, 32, 479—493.[CrossRef][Medline]
[Order article via Infotrieve]
- U.S. Department of Education. (n.d.). History of the IDEA: Twenty-five years of progress in educating children with disabilities through IDEA Retrieved April 22, 2004, from http://www.ed.gov/policy/speced/leg/idea/history.html
- Volkmar, F. R. (Ed.). (1999). The screening and diagnosis of autistic spectrum disorders [Special issue on diagnosis and assessment]. Journal of Autism and Developmental Disorders, 29, 439—484.[CrossRef][Medline]
[Order article via Infotrieve]
- Volkmar, F., Chawarska, K., & Klin, A. (2005). Autism in infancy and early childhood. Annual Review of Psychology, 56, 315—336.[CrossRef][Medline]
[Order article via Infotrieve]
- Watson, L.R., Baranek, G.T., & DiLavore, P.C. (2003). Toddlers with autism: Developmental perspectives. Infants and Young Children, 16(3), 201—215.
- Werner, E., Dawson, G., Osterling, J., & Dinno, N. (2000). Recognition of autism spectrum disorder before one year of age: A retrospective study based on home videotapes. Journal of Autism and Developmental Disorders, 30, 157—162.[CrossRef][Medline]
[Order article via Infotrieve]
- Yeargin-Allsopp, M., Rice, C., Karapurker, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. JAMA: The Journal of the American Medical Association, 289, 49—55.[Abstract/Free Full Text]
- Young, K., Davis, K., Schoen, C., & Parker, S. (1998). Listening to parents: A national survey of parents with young children. Archives of Pediatrics and Adolescent Medicine, 152, 255—262.[Abstract/Free Full Text]

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