Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

CiteULike is a free service for managing and discovering scholarly references - click here to get started.

Sign In to gain access to subscriptions and/or personal tools.
Journal of Disability Policy Studies
This Article
Right arrow Abstract Freely available
Right arrow Free Full Text (Free PDF) Free
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Dymond, S. K.
Right arrow Articles by Myran, S. P.
Right arrow Search for Related Content
Social Bookmarking
 Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
What's this?

Services for Children With Autism Spectrum Disorders

Stacy K. Dymond

University of Illinois at Urbana-Champaign, sdymond@ uiuc.edu

Christie L. Gilson

University of Illinois at Urbana-Champaign

Steve P. Myran

Old Dominion University

Recommendations for improving school and community-based services for children with autism spectrum disorders (ASD) in the state of Virginia were investigated. Participants consisted of 783 parents of children birth to age 22 with a medical diagnosis of ASD. Data obtained through an open-ended survey question were analyzed both quantitatively and qualitatively. Parents recommended improving the quality, quantity, accessibility, and availability of services; educating and training individuals to work effectively with children with ASD; increasing funding for services; and creating appropriate school placements and educational programs. The findings from this study suggest the need for increased individualization of and accessibility to services. Future state-level research must examine the variables that affect parent recommendations and evaluate the quality of existing services for children with ASD.

References

  • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text Rev.). Washington, DC: Author.
  • Barnhill, G.P., Hagiwara, T., Myles, B.S., Simpson, R.L., Brick, M.L., & Griswold, D.E. (2000). Parent, teacher, and self-report of problem and adaptive behaviors in children and adolescents with Asperger syndrome. Diagnostique, 25, 147—167.
  • Bryson, S.E., & Smith, I.M. (1998). Epidemiology of autism: Prevalence, associated characteristics, and implications for research and service delivery. Mental Retardation and Developmental Disabilities, 4, 97—103.[CrossRef]
  • du Plessis, D., & Bailey, J. (2000). Isolated parents' perceptions of the education of their children with disabilities. Education in RuralAustralia,10(2), 2—26.
  • Dymond, S.K., & Myran, S. (2002). Services available for individuals with autism and pervasive developmental disorders (House Document No. 21). Richmond: Virginia Department of Education.
  • Feinberg, E., & Beyer, J. (1998). Creating public policy in a climate of clinical indeterminancy: Lovaas as the case example du jour. Infants and Young Children, 10(3), 54—66.
  • Feinberg, E., & Vacca, J. (2000). The drama and trauma of creating policies on autism: Critical issues to consider in the new millennium. Focus on Autism and Other Developmental Disabilities, 15, 130—137.
  • Fong, L., Wilgosh, L., & Sobsey, D. (1993). The experience of parenting an adolescent with autism. International Journal of Disability, 40, 105—113.[CrossRef]
  • Freeman, B.J. (1997). Guidelines for evaluating intervention programs for children with autism. Journal of Autism and Developmental Disorders, 27(6), 641—651.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Geiger, D.M., Smith, D.T., & Creaghead, N.A. (2002). Parent and professional agreement on cognitive level of children with autism. Journal of Autism and Developmental Disabilities, 32, 307—312.[CrossRef]
  • Gillberg, C. (1999). Prevalence of disorders in the autism spectrum. Infants and Young Children, 12(2), 64—74.
  • Grandin, T. (1995). Thinking in pictures and other reports from my life with autism. New York: Vintage Books.
  • Guba, E.G., & Lincoln, Y.S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
  • Hamre-Nietupski, S., Hendrickson, J., Nietupski, J., & Sasso, G. (1993). Perceptions of teachers of students with moderate, severe, or profound disabilities on facilitating friendships with nondisabled peers. Education and Training of the Mentally Retarded, 28, 111—127.
  • Hamre-Nietupski, S., Nietupski, J., & Strathe, M. (1992). Functional life skills, academic skills, and friendship/social relationship development: What do parents of students with moderate/severe/profound disabilities value? The Journal of the Association for Persons with Severe Handicaps, 17, 53— 58.
  • Heflin, J., & Simpson, R.L. (1998a). Interventions for children and youth with autism: Prudent choices in a world of exaggerated claims and empty promises: Part I. Intervention and treatment option review. Focus on Autism and Other Developmental Disabilities, 13(4), 194—211.
  • Heflin, J., & Simpson, R.L. (1998b). Interventions for children and youth with autism: Prudent choices in a world of exaggerated claims and empty promises: Part II. Legal/policy analysis and recommendations for selecting interventions and treatments. Focus on Autism and Other Developmental Disabilities, 13(4), 212—220.
  • Hodapp, R.M., Freeman, S.F.N., & Kasari, C.L. (1998). Parental educational preferences for students with mental retardation: Effects of etiology and current placement. Education and Training in Mental Retardation and Developmental Disabilities, 33, 342—349.
  • Individuals with Disabilities Education Act of 1990, 20 U.S.C. § 1400 et seq. (1990) (amended 1997)
  • Jacobson, J.W., & Mulick, J.A. (2000). System and cost research issues in treatments for people with autistic disorder. Journal of Autism and Developmental Disorders, 30, 585—593.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Jarbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service, and cost impacts of children with autistic spectrum disorder: A pilot study. Journal of Autism and Developmental Disorders, 33, 395—402.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Kasari, C., Freeman, S.F.N., Bauminger, N., & Alkin, M.C. (1999). Parental perspectives on inclusion: Effects of autism and Down syndrome. Journal of Autism and Developmental Disorders, 29, 297—305.[CrossRef][Web of Science][Medline] [Order article via Infotrieve]
  • Kluth, P. (2004). Autism, autobiography, and adaptations. Teaching Exceptional Children, 36(4), 42—47.
  • Kohler, F.W. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14, 150—158.
  • Little, L. (2003). Maternal perceptions of the importance of needs and resources for children with Asperger syndrome and nonverbal learning disorders. Focus on Autism and Other Developmental Disabilities, 18, 257— 266.
  • Marcus, L.M., Rubin, J.S., & Rubin, M.A. (2000). Benefit-cost analysis and autism services: A response to Jacobson and Mulick. Journal of Autism and Developmental Disorders, 30, 595—598.[CrossRef][Medline] [Order article via Infotrieve]
  • McMillan, J. (2004). Educational research: Fundamentals for the consumer. Boston: Pearson Education.
  • Minor, C., & Bates, P. (2002). Person-centered transition planning: Creating lifestyles of community inclusion and autonomy. In K. Storey, P. Bates, & D. Hunter (Eds.), The road ahead: Transition to adult life for persons with disabilities (pp. 7—24). St. Augustine, FL: Transition Resource Network.
  • National Center on Birth Defects and Developmental Disabilities. (n.d.). About autism. Retrieved September 23, 2004, from http://www.cdc.gov/ncbddd/dd/aic
  • No Child Left Behind Act of 2001, 20 U.S.C. 70 § 6301 et seq. (2002)
  • Patton, M.Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
  • Prizant, B.M., & Rubin, E. (1999). Contemporary issues in interventions for autism spectrum disorders: A commentary. The Journal of the Association for Persons with Severe Handicaps, 24, 199—208.[CrossRef]
  • Rosenkoetter, S.E., Whaley, K.T., Hains, A.H., & Pierce, L. (2001). The evolution of transition policy for young children with special needs and their families: Past, present, and future. Topics in Early Childhood Special Education, 21, 3—15.[Abstract/Free Full Text]
  • Ruef, M.B., & Turnbull, A.P. (2001). Stakeholder opinions on accessible informational products helpful in building positive, practical solutions to behavioral challenges of individuals with mental retardation and/or autism. Education and Training in Mental Retardation and Developmental Disabilities, 36, 441—456.
  • Scheuermann, B., Webber, J., Boutot, E.A., & Goodwin, M. (2003). Problems with personnel preparation in autism spectrum disorders. Focus on Autism and Other Developmental Disorders, 18, 197—206.
  • Schumm, J.S., & Vaughn, S. (1992). Planning for mainstreamed special education students: Perceptions of general education teachers. Exceptionality, 3, 81—98.
  • Simpson, R.L. (2004). Finding effective intervention and personnel preparation practices for students with autism spectrum disorders. Exceptional Children, 70, 135—144.
  • Simpson, R.L. (2005a). Autism spectrum disorders: Interventions and treatments for children and youth. Thousand Oaks, CA: Corwin.
  • Simpson, R.L. (2005b). Evidence-based practices and students with autism spectrum disorders. Focus on Autism and Developmental Disabilities, 20, 140—149.
  • Spann, S.J., Kohler, F.W., & Soenksen, D. (2003). Examining parents' involvement in and perceptions of special education services: An interview with families in a parent support group. Focus on Autism and Other Developmental Disabilities, 18, 228—237.
  • Sperry, L.A., Whaley, K.T., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorder: Voices of parents and providers. Infants and Young Children, 11(4), 17—33.[Web of Science]
  • Starr, E.M., Foy, J.B., & Cramer, K.M. (2001). Parental perceptions of the education of children with pervasive developmental disorders. Education and Training in Mental Retardation and Developmental Disabilities, 36, 55—68.[Medline] [Order article via Infotrieve]
  • Stone, W.L., & Rosenbaum, J.L. (1988). A comparison of teacher and parent views of autism. Journal of Autism and Developmental Disorders, 18, 403— 414.
  • Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
  • Tashakkori, A., & Teddlie, C. (2003). Handbook of mixed methods in the social and behavioral research. Thousand Oaks, CA: Sage.
  • Virginia Department of Education. (2004). Report of children and youth with disabilities receiving special education. Retrieved September 20, 2004, from www.pen.k12.va.us
  • Wesley, P.W., Buysse, V., & Tyndall, S. (1997). Family and professional perspectives on early intervention: An exploration using focus groups. Topics in Early Childhood Special Education, 17, 435—456.[Abstract/Free Full Text]
  • Whitaker, P. (2002). Supporting families of preschool children with autism: What parents want and what helps. Autism, 6, 411—426.[Abstract/Free Full Text]
  • Williams, D. (1992). Nobody nowhere. New York: Times Books.

Journal of Disability Policy Studies, Vol. 18, No. 3, 133-147 (2007)
DOI: 10.1177/10442073070180030201


Add to CiteULike CiteULike   Add to Complore Complore   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati   Add to Twitter Twitter    What's this?



This Article
Right arrow Abstract Freely available
Right arrow Free Full Text (Free PDF) Free
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Dymond, S. K.
Right arrow Articles by Myran, S. P.
Right arrow Search for Related Content
Social Bookmarking
 Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
What's this?