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Estimating the Size of the Adult Population Needing Personal Assistance Services

Implications for National Disability Policy

JAE KENNEDY is an assistant professor of health policy and administration at the University of Illinois in Urbana-Champaign, and serves as the director of the long-term care statistics project at the Disability Statistics Research and Training Center in the University of California at San Francisco.

Legislative initiatives to expand federal funding of personal assistance services (PAS) have relied primarily or exclusively on need for assistance with activities of daily living (ADLs). Analyses of the U.S. Census Bureau's 1990 and 1991 Survey of Income and Program Participation (SIPP) indicate that roughly 1.4 million Americans report needing assistance with three or more ADLs, and that 35% of these are under age 65. Only a small subset of the population needing assistance with three or more ADLs (22%) also report family incomes at or below the federal poverty level, suggesting that means-testing could significantly reduce the size of the population eligible for a federal benefit. Different ADL, age, and income criteria substantially affect the size and composition of the eligible population. The policy implications and limitations of these findings are discussed.

Journal of Disability Policy Studies, Vol. 9, No. 1, 7-30 (1998)
DOI: 10.1177/104420739800900102


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