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Participation of Individuals With Developmental Disabilities and Families on Advisory Boards and Committees

Association of University Centers on Disabilities, jcaldwell{at}aucd.org

Sharon Hauss

Indiana University

Bethany Stark

University of California, Los Angeles

A participatory action research approach was adopted to explore supports that enhance participation of individuals with developmental disabilities and family members on advisory committees. Focus groups and open-ended surveys were conducted with staff from University Centers for Excellence in Developmental Disabilities and members of their Consumer Advisory Committees. Five themes emerged: (a) individualized supports, (b) financial supports, (c) coordination and communication, (d) leadership development, and (e) value and outcomes. Themes provide practical guidance to organizations as well as highlight broader systemic issues.

Key Words: developmental disability • family • self-advocacy • advisory committees

This version was published on September 1, 2009

Journal of Disability Policy Studies, Vol. 20, No. 2, 101-109 (2009)
DOI: 10.1177/1044207308327744


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